Wednesday, June 15, 2011

So here I am, taking a sick day (due to a morning fever and achy body), doing nothing really, downloading some musica, and watching trailers from the US version and the Swedish version of Girl With the Dragon Tattoo (and in the foreign versions, also for Girl Who Played with Fire, and Girl Who Kicked the Hornet's Nest). So badass. With the exception of the fact that her life was kinda sucky and traumatic, I totally wish I could be as cool as Lisbeth Salander. But I wouldn't smoke. I would just choke and plus it is cancerous. Yuck. But the awesome hacking and motorcycle riding and all that, sweet. Of course, I'm not really the badass type I guess. Maybe I should get a giant dragon tattoo and see what that does for me, lol. In other news, not much going on. Have a party that I am the "designated photographer" for on Friday. Also, Kat and Chris will be coming home, likely with the dogs, and it is likely that they will be putting Dolce down on Friday and burying her at Chris' parent's house. She has a massive amount of cancer on her stomach and intestines and in her lymph nodes, so if she makes it to Friday, they'll bring her back and do it here. It is so sad. Our dogs are our family, and it is so difficult to have to let them go. But they honestly gave her the best life possible, after she had been homeless and through god only knows what else. And she loved being part of their family. It is just so hard. I have no idea what I'm going to do when Vivi has to go....I might just jump off the gold star bridge myself. Too Awful. Anyway...like I said not that much else going on. Kinda a nice day outside. Might force myself to get cleaned up and go breathe in some fresh air. We shall see.

A couple of Fridays ago, went to NYC to see Beth and Blew's new apartment, and met up with Cole, Phil, Kelly & Casey for drinks and fun times. And it was fun times. Stayed out till like 2am! Which if you know me, is really a big deal. I miss them all so much...I wish I lived closer or was more travel ready all the time so I could pop in and see them more often. Ah but what can you do. At least we had a lovely night....they are awesome.

Well.....thats about it. Nothing else goes on in my life really. But figured I'd post anyway, in the spirit of trying to keep up my blog.

Sunday, May 22, 2011

it has been over a year...

and lots has happened. Surgical sympathectomies on both hands (resulting in much better Raynaud's control, as well as 6 massive and totally bad-ass scars), chemotherapy for my lupus (which totally helped my numbers- hooray!), a crazy toe infection that spread to the bone (osteomyelitis) that could NOT be killed off with just antibiotics, leading to a partial toe amputation. That one is still healing....there is a scab on the end that has to fall off, so until it does I'm not allowed to wear close-toed shoes on my left foot, because the surgeon fears anything rubbing against it will cause another infection. Great. Oh and I have had 3 blood clots in my arms due to picc-lines that were put in for antibiotics. I've not been at work all that much, but have been able to work from home a lot so I'm not completely broke and/or useless to CSC. Als, my dad recently returned home after having a crazy infection of his own that caused a major abscess on his spinal cord that had to be operated on. He had a second one later in the hospital stay, but that one was drained laparoscopically with no large wounds. After the hospital he was in a rehab facility (read- old people's home- super creepy) to build up his muscular strength and endurance, and now he has been released just yesterday, and is getting used to being back home. I am living at my mother's house because she feels that I don't take good enough care of myself, and when I have low blood sugars and things, it is too stressful for my father and younger sister to deal with. So Vivienne and I packed up our duds and moved to New London. It is strange, but we're doing ok. So that is the update really....not much else to say. I'm trying really really hard to keep pushing myself in PT and work to get better all the time, and I have frequent setbacks....but I think things will continue to improve if I keep a positive attitude. Fingers crossed!