it has been over a year...

and lots has happened. Surgical sympathectomies on both hands (resulting in much better Raynaud's control, as well as 6 massive and totally bad-ass scars), chemotherapy for my lupus (which totally helped my numbers- hooray!), a crazy toe infection that spread to the bone (osteomyelitis) that could NOT be killed off with just antibiotics, leading to a partial toe amputation. That one is still healing....there is a scab on the end that has to fall off, so until it does I'm not allowed to wear close-toed shoes on my left foot, because the surgeon fears anything rubbing against it will cause another infection. Great. Oh and I have had 3 blood clots in my arms due to picc-lines that were put in for antibiotics. I've not been at work all that much, but have been able to work from home a lot so I'm not completely broke and/or useless to CSC. Als, my dad recently returned home after having a crazy infection of his own that caused a major abscess on his spinal cord that had to be operated on. He had a second one later in the hospital stay, but that one was drained laparoscopically with no large wounds. After the hospital he was in a rehab facility (read- old people's home- super creepy) to build up his muscular strength and endurance, and now he has been released just yesterday, and is getting used to being back home. I am living at my mother's house because she feels that I don't take good enough care of myself, and when I have low blood sugars and things, it is too stressful for my father and younger sister to deal with. So Vivienne and I packed up our duds and moved to New London. It is strange, but we're doing ok. So that is the update really....not much else to say. I'm trying really really hard to keep pushing myself in PT and work to get better all the time, and I have frequent setbacks....but I think things will continue to improve if I keep a positive attitude. Fingers crossed!